ALEX SCHADENBERG New comment on EUTHANASIA PREVENTION COALITION GRANTED INTERVENOR….

Dear Alex,

Before you guys go to trial, I just want to share a little more on points included in your post:

"…and promoting compassionate healthcare respectful of the lives, dignity and autonomy of vulnerable people." "

Home-care workers and nurse-assisstants (called PA’s here) perform the same services. Overall, this hospital accomodates much of what the patients and their families want, regarding doctors’ care. The long-term unit, and the acute-care floor who deal with chronic-care, see the same "patients" regularly. It is the department of nurses, where the strain in relations takes place.–And this holds true from personal experience at my apartment, between 1996-2000. Before that I always had people to live with.

Twice I was robbed by home-care workers, and only discovered it when I had to get groceries and pay my rent. I only needed help to get my legs on and off morning and night, dishes and trash taken care of, and my home-care workers had it pretty easy.

In an institutional-environment, nurses and PA’s are a mix of good and bad. Due to being an insider, I mind my own business unless a patient or their family member talk complaints over with me. I automatically tell them their options, but if things are continuous, and I’m aware of it, I break all the rules they made here and have it out with the patient’s offenders, and the head-nurses.

If I didn’t have this constant retro-active threat of eviction, when problems get bad enough around here, I would probably try to see all the bi-lingual patients, to survey any complaints they have. Because I don’t get involved with most recreation activities (too busy working with on-line activists and studying), I assume most of the patients are happy. The only trached patient I know who has been abused since he moved in a few years ago, has ALS.

He has written with extreme difficulty and pain, several letters to different influential people he knows. One of the worst situations all trached patients have to deal with, is having to be suctioned by a Respiratory-Technician or nurse, who have an attitude problem. I won’t repeat what happened to me in 2008, when they could not intubate me for surgery, and inserted a trache (my second trache). One night-shift nurse took advantage of being the only person available, to suction during a 2-hour break of other ICU nurses and RT. I think it was retaliation for her friend, who lost his court-case against being fired in 2005, for taking a swing at me one night-shift.

This other patient’s mother and him have demanded that 2 nurses are not allowed to treat him anymore, because of the continued physical and mental abuse.–However, schedules have always been co-ordinated to maintain, that the abusive nurses are the only nurses available, whenever it is scheduled that way.

These attitudes never existed before so much continuous attention is given to legalizing euthanasia/assissted-suicide.

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About Ironsides

I was born in 1951 with Arthrogryposis, developed scoliosis at ten years old, but travelled alot and worked in several countries with a religious cult. All my adult life I have had to live with others, and after three respiratory-failures I had to move into a long-term care institution.
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