A Needed Penalty System for Abusive Palliative-Care Employees


Today, I can safely say that I have witnessed the final straw in patient-abuse. It comes from an ALS patient, who since being transferred to this long-term care unit over three years ago, has experienced alot of low-standard care, and verbal blasts by head-nurses and administration. One example, is the times when he would painstakingly slowly type any instructions he needed care-givers to know, they would disregard anything he wrote, and he would be in agony for hours.

His mother has communicated with his nurses, PA’s, Patients’ Committee, the Ombudsman and the hospital’s top administration. Today, she was told by the top administrator in charge of all employees, that she needs to seek psychiatric help. Just as I used to be blamed for the mis-treatment my wife’s SCARE-GIVERS gave Nancy, this ALS patient’s mother is blamed for everything which has happened to him. In 2004 at one point, I followed Maria Barille’s recommendations and followed up on the contacts she referred me to. Both Nancy and me really appreciated that help.

When the head-nurse then realized I was consulting with outside help, it made them consider some of what was going on here, and to try and resolve issues in Nancy’s care. However, I was told that because I was an insider, I was limited in what I could do legally. In this other patient’s case, his mother has been told the complete opposite, in so many words. She’s an outsider, and doesn’t have any say in anything.

Unlike other patients in the same circumstances, if the workers carry out unbearable procedures, he isn’t about to just resign to his legal option to terminate treatment and nutrients. Now the patient and his mother want to try and have him moved to Vancouver, where he knows a neurologist.

The point is, though, things might improve for him in Vancouver; but it will not change a thing for other ALS and MS patients. The “palliative-care” standards are not being respected, under certain circumstances. If they were, why do they treat his mother, 70 years old, like the social-trash they treated Nancy and me?

As bad as his situation has been at times, number of offenders has definitley reduced in number. What the main source of the problem has stemmed from, involves two or three favorited veteran nurses who have alot of seniority. As long as they do their job “technically perfect” with the patients they favor, or who are intimidated to say anything, they can do what they want.–There is never any proof of wrong-doing, sort of attitude.

What stands out to me, is that unless a “long-term patient” is rightfully or wrongfully labelled “the abuser”, there is no punishment system whatsoever. Hospitals and long-term care insitutions need to change; there definitely needs to be a compilation of the list of types of abuses by employees inside these places, and a list of 1st, 2nd and 3rd offence punishments executed against staffers.

This is how I view things from a long-term patient. If anyone has feedback concerning these issues, I’d apprecciate reading the replies, and if anybody can and will do something to fix these problems across Canada and the U.S.!


About Ironsides

I was born in 1951 with Arthrogryposis, developed scoliosis at ten years old, but travelled alot and worked in several countries with a religious cult. All my adult life I have had to live with others, and after three respiratory-failures I had to move into a long-term care institution.
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